What If It’s Not Behavior? Understanding Whole Body Apraxia in Autism with Dr. Dana Johnson

Many parents of non-speaking autistic children carry a quiet certainty: my child understands more than they can show. In this episode of Inchstones, Sarah Kernion sits down with occupational therapist, researcher, and Spellers Method co-creator Dr. Dana Johnson to explore whole body apraxia, motor planning, communication, and why behavior may not tell the whole story.

For years, families have been told to trust observable behaviors as the primary measure of understanding. Dr. Johnson challenges that assumption by explaining how motor planning differences can prevent autistic individuals from reliably demonstrating what they know, understand, or intend to communicate.

Together, Sarah and Dr. Johnson discuss whole body apraxia, non-speaking autism, presuming competence, sensory regulation, motor coaching, and the ways parents are often dismissed when their observations don’t align with traditional clinical models.

The conversation explores:

* whole body apraxia and autism
* non-speaking autism and communication
* motor planning challenges
* presuming competence
* autism and regulation
* maternal intuition and clinical observation
* supporting autistic children beyond behavior-based assumptions
* co-regulation and caregiver support

Dr. Johnson also shares how her work evolved after listening to parents whose experiences challenged what she had been taught professionally. Her message is both practical and hopeful: understanding motor differences can fundamentally change how families, therapists, and educators support autistic children.

This episode is for parents, caregivers, educators, therapists, and anyone interested in communication, autism advocacy, profound autism, and understanding what may exist beneath observable behavior.

In This Episode

00:00 – Maternal intuition, autism, and the limits of observation
02:00 – Why parents are often dismissed by professionals
04:15 – The story that led Dr. Johnson to rethink autism therapy
05:45 – What whole body apraxia actually means
07:15 – Understanding motor planning and communication barriers
08:00 – Why behavior does not always reflect understanding
09:30 – The backpack example: motor planning in daily life
11:00 – Typical childhood behavior versus apraxia
12:30 – Why presuming competence matters
14:00 – How professionals unintentionally limit autistic children
16:00 – Reading ability, communication, and hidden competence
17:00 – Regulation, sensory overwhelm, and motor control
19:00 – Why parents must regulate themselves first
21:00 – The invisible pressure placed on mothers
23:00 – Co-regulation and caregiver support
25:00 – Building confidence through small wins and inchstones
28:00 – Supporting parents, not just children
30:00 – The fear every autism parent carries about the future

Listen to more episodes of the Inchstones Podcast, where Sarah Kernion explores autism advocacy, caregiver stories, profound autism, communication, neurodivergent parenting, and the small inchstones that shape meaningful lives.

About Dr. Dana Johnson:

For more than 20 years, Dr. Johnson has worked alongside incredible families who have taught her what true resilience, patience, and hope look like. Through this work, she has learned that two things can be true at once: your child can struggle and make incredible progress at the same time.

Recognizing that too many professionals didn't know how to truly help these families, Dr. Johnson created her YouTube channel, “The Autism + Apraxia Doctor,” and expanded her reach across multiple platforms to educate professionals in the autism field. She specializes in helping individuals with complex autism, whole-body apraxia, and other neurodevelopmental disabilities develop intentional motor skills and improve their overall health.

Her mission is to empower families and professionals to see autism through a new lens, one that recognizes the body-brain connection, promotes health, and opens doors to possibilities many once thought were out of reach. Her work is rooted in a deep belief that her clients are capable, intelligent, and deserving of the support needed to unlock their full potential.

Dr. Johnson is the Founder of Spellers Center Tampa and Atlanta and the co-creator of the Spellers Method™. She holds a Master's degree in Occupational Therapy and a Ph.D. in Child Mental Health and Development.

Find her work here:
YouTube: https://www.youtube.com/@DrDanaJohnson
Instagram: https://www.instagram.com/drdanajohnson/
Website: www.drdanajohnson.com